Bigger Than Our Bodies

Welcome to Holland

Jeff — Mon, 16 Nov 2009 07:08:39 +0000

“The Quist family welcomed their son Todd into the world on November 21, 2001. It took a month to diagnose their sons condition that was barely noticeable at birth as a rare chromosomal disease called PKS (Pallister-Killian Syndrome). Through the following years of Todd’s life the Quist’s have adapted to the joys and the challenges of a new child with special needs.”

Find out more about the Quist family and the film’s progress at welcometohollandfilm.com.

PKS Kids Raising Pediatrician Awareness

Jeff — Thu, 15 Oct 2009 15:35:28 +0000

As published in a recent press release, The American Legion Child Welfare Foundation has given PKS Kids a grant to fund their awareness-raising efforts.

PKS Kids of Florissant, Mo., was awarded $29,500 for their project “Recognizing A Pallister-Killian Child.” This grant will, through a direct mail campaign, raise awareness of Pallister-Killian Syndrome by 50,000 pediatric doctors.

An early diagnosis of PKS gives caregivers a jump start in planning a safe and rewarding life with their new child.

PKS Brown Bag Lunch Discussion

Jeff — Fri, 07 Aug 2009 18:18:22 +0000

Olivet, MI – Brown Bag Lunch Discussion Noon to 1 p.m. Monday, Oct. 12 in the Library Lecture Room. Gretchen Peters, interlibrary loan coordinator, will discuss Pallister-Killian Syndrome (PKS), as well as the non-profit organization PKS Kids. Participants should bring a brown bag lunch.

From BattleCreekEnquirer.com

Motorcycle Ride for PKS

Jeff — Tue, 02 Oct 2007 15:40:53 +0000

The PKS Kids folks held a Motorcycle Ride on Long Island last week to raise money and awareness about our kids with Pallister Killian Mosaic Syndrome. The article suggests that the PKS Support Group was result of PKS Kids, when the opposite is true. Starting the non-profit organization, however, was an important step in promoting our cause.

Jake’s World

Jeff — Wed, 25 Jul 2007 15:35:21 +0000

Nicole Zane has invited us all into Jake’s World, a website she created to celebrate the achievements of her son. There are photos, videos and a list of milestones showing Jake’s progress.

Second Annual PKS Family Reunion

Jeff — Wed, 21 Mar 2007 21:41:44 +0000

Last year, we attended what was most likely the first ever international Pallister Killian Mosaic Syndrome gathering, with around 15 families meeting to discuss life with PKS among ourselves and a small group of medical professionals.

Based on that resounding success, a second gathering has been planned for early August in Columbus Ohio. Visit the PKS Support Yahoo Group for more info!